An account has been set up at the Lewisburg Bank to facilitate funding for a local young lady who suffers from a debilitating condition to purchase a bed. The account is under “Love for Lindsey” and donations can be mailed or accepted at any Lewisburg Branch.
Lindsey Evans was born with a condition very few people have heard of. They call it “The Worst Disease You’ve Never Heard Of.” Epidermolysis Bullosa (EB) is a rare genetic connective tissue disorder that affects 1 out of every 20,000 births in the United States (approximately 200 children a year are born with it). There is no treatment or cure. There are many genetic and symptomatic variations of EB, but all share the prominent symptom of extremely fragile skin that blisters and tears from minor friction or trauma. Internal organs and bodily systems can also be seriously affected by the disease. EB is always painful, often pervasive and debilitating, and is in some cases lethal before the age of 30. EB affects both genders and every racial and ethnic background equally. Daily wound care, pain management, and protective bandaging are the only options available for people with EB.
Lindsey is in daily pain. One of the worst is her back. She and her mother currently share a queen sized bed. Lindsey has sleepless nights due to the bed she has now. She would like a larger one that elevates helping her to sleep better at night.
Lindsey’s mom Linda is her caregiver. She stays home and takes care of her daughter in their small one bedroom apartment in Russellville.
A Go Fund Me account was created to help Lindsey, however, due to scams most do not donate to these accounts they have found. This is why an account was set up at a bank to help.
To contact Chris Cooper, email [email protected] or call 270-726-8394.